The number of potential patients who call themselves “very willing” to participate in a clinical trial has continued to drop between 2013 and 2017, according to a new survey from The Center for Information and Study on Clinical Research Participation (CISCRP).
Generally, people from South America, Europe, and Asia were less willing to participate. Younger populations also indicated a lower willingness to join a trial.
Overall, less than a third (31%) identified themselves as willing to participate in the most recent study of such sentiments, down from 50% in 2013 and 39% in 2015. The data come from CISCRP’s new “2017 Perceptions & Insights Study.” Between May and July, CISCRP received 12,427 responses to its online survey. About half of the respondents were from North America; 59% of total respondents were women.
Risk of side effects or death were cited as the top concern of nearly three-quarters of respondents. A little more than half cited altruistic reasons for participating, saying they were most compelled by the idea that they may be helping science or individual patients to defeat or mitigate a disease.
On the positive side, the survey found that those who had participated in a clinical trial before were much more willing to join another.
The majority (58%) said they would begin investigating the possibility of trial participation by asking their doctor. Using online clinical trial registries as a resource was cited by 40% of respondents, while using general search engines was noted by 30%.
However, only 10% of those who had never participated in a clinical trial said their doctor had ever asked them to participate in a study in general. Nearly 90% of respondents said it was valuable for their regular doctor to present clinical research study options during a physician visit.
The vast majority (91%) would prefer to have their clinical study procedures conducted during a regular visit versus having to go to a separate clinic.
Nearly three-quarters (74%) expressed interest in discussing clinical trial participation in an online peer community, especially among Black/African Americans and Hispanics.
While 93% are comfortable using their medical health record to identify an appropriate clinical study, fewer than half (43%) are familiar with electronic health records.
About half of study participants said they had joined an interventional study. A wide variety of medical conditions were reported, with an average of six visits. Arthritis and allergies were the most common medical conditions, followed closely by overall pain, heart/cardiovascular, and diabetes.
Author: Michael Causey